Patients and families often assume their doctors are trained and knowledgeable about end of life. Patients and families also assume that doctors will tell them when time is running out, what to expect and how best to navigate these unknown and frightening waters. But many doctors don’t do these things. Most, in fact, have no training in this. Medical school and residency have traditionally provided little or no instruction on how to continue to care for patients when treatments no longer work.
Physicians are trained to make diagnoses and to treat disease. Untrained in skills such as pain and symptom management, communication about what to expect in the future and achievable goals for care, physicians do what we have been trained to do: Order more tests, more procedures, more treatments, even when these things no longer help. Even when they no longer make sense.
So how do we fix this? To change behavior, we must change the education and training of young physicians and the professional and clinical culture in which they practice. New doctors should learn about the management of symptoms such as pain, shortness of breath, fatigue and depression, with intensive training on doctor-patient communication: how to relay bad news, how to stand with patients and their families until death and how to help patients and families make the best use of their remaining time together.
| Commentary |
CMDA Past President and Oncologist Al Weir,
MD: “The author describes an unusual case history to suggest two
important questions: As doctors, do we know how to resist making life longer
when it’s no longer likely and instead focus profoundly on making life the best
it can be? Do we know how to ask others to help us in this task?“Sometimes we, and our patients, may cling to hopes that are no longer realistic. Instead, we should be open and honest and help our patients navigate their way through a new truth of life. Such a shift in effort does not come naturally for most of us; time, skills and compassion are required. Palliative care teams are often the best way to supplement the capabilities and time we may be lacking.
“Even experienced doctors should seek to sharpen their skills and become mentors for our next generation, so that these younger doctors may be more adept at compassionate end of life care than we have been.
“Today was an unusual day for me in which I had the privilege of sharing bad news and redirecting life goals with three patients, while a medical student leaned silently against the exam room wall. After the last such conversation I probably surprised him by saying, “You know, though the circumstances are horrible, I actually like having these conversations. In such moments, I can be the one who shares this awful truth with kindness and love. I trust myself to do this better than others, because I really care for them. I did the work to help them live longer. Now things have changed and I can do the work to help them live better.”
Resources
End of Life Care Resources
Medical Futility Ethics Statement
When Your Doctor Has Bad News by Al Weir, MD
Are you interested in learning more about bioethics? Join us in Deerfield, Illinois on June 19-21, 2014 at The Center for Bioethics & Human Dignity’s 21st Annual Summer Conference – Bioethics in Transition. With a variety of workshops and courses, you will examine the rapid advances in medicine, science and technology that continue to reshape the scope and landscape of bioethics.
CMDA Psychiatry Section Chair John Yarbrough, MD,
MBA:“Working as a physician today is different than it was when my
father began his practice in internal medicine nearly 40 years ago. Insurances,
laws, decreased time with patients, board certifications and electronic medical
records are amongst many potential contributors to making life miserable. The
demands placed upon us can be overwhelming.
CMDA CEO David Stevens, MD, MA
(Ethics):"While the medical technology being applied to Mrs. Munoz’s
body might be considered “organ support” for her, it was “life support” for her
unborn child. At the time of her death the baby was a few days from reaching
24-weeks gestation when survival rates approach 50%. Every day of continued life
support improved the odds of the baby’s survival.
Clinical Ethicist and CMDA Trustee Robert D. Orr,
MD, CM:“Marlise Munoz was dead, but her 14-week old fetus was alive. If
Mom’s organs could be successfully perfused for another 12-14 weeks, her unborn
baby could survive and be delivered by C-section. It is possible, though
clinically very challenging. But should it be done?
CMA VP for Govt. Relations Jonathan
Imbody– “Respect for life need not be a partisan proposition, and
thankfully some politicians challenge the notion that a party cannot
simultaneously advance the interests of women and babies. That's crucial,
because decades ago, a specious argument of radical feminists began to prevail
in the courts and with many politicians and women--namely, that a woman cannot
advance professionally apart from the ability to terminate the life of her
unborn child. Thankfully, many pro-life professional women, including members of
organizations like CMDA's
Gastroenterologist Jeff Fenyves, MD: -- “While most
of practicing clinicians would agree with Dr. Botkin in regard to the importance
of public trust, there are many viewpoints as to the best path to take in the
case of Biobanks and research. Educating the public, especially given the
diversity of types of biobanks, would be impractical. Prior studies already show
that the public generally supports the broad goals of genetic
research.1
CMDA Member and Associate Professor of Anesthesiology J.
Grady Crosland, MD, MAR: “‘Whatever it is, I fear Greeks even when they
bring gifts’ (Virgil’s Aeneid).
CMDA Member and Psychiatrist Robert Rogan, DO, JD:
“This article touches on several current issues in mental health affecting our
society. One, the loss of autonomy, may be far more serious than we realize. The
freedom to serve as we in conscience believe best is something we need as
believing practitioners. Conscience issues are already prominent in current
medical practice in general. If we can’t ‘choose our clients,’ we may find
ourselves being asked to provide therapy in an area we find morally
uncomfortable.
Matt Bowman, Senior Legal Counsel, Alliance
Defending Freedom– “Two new cases have vindicated religious freedom for
people in their everyday professions, and have upped the ante for another
Supreme Court showdown, in 2014, with the Obama administration over religious
liberty and Obamacare. The U.S. Courts of Appeals for the Seventh and D.C.
Circuits, in Chicago and Washington, respectively, both ruled in the last few
days that when people of faith engage in a business they do in fact possess the
freedom to exercise their religious beliefs when the government commands them to
violate those beliefs. The Gilardi family out of Ohio, the Korte family of
Illinois and the Grote family in Indiana all run businesses and seek to do so
consistent with their Christian faith. They object to the Obamacare mandate to
provide abortifacient drugs, contraception and sterilization in their employee
health plans.
CMDA Member Julie Griffin, MD: -- “Demanding
schedules, flawless precision and an enduring calm in calamity—these are
expectations of physicians. We have often placed these ultimatums on ourselves
with our detailed, driven personalities pushing us to unattainable perfection.
Nevertheless, the culture increasingly demands a new maximum.
CMDA Senior Vice President Gene Rudd, MD: “I rarely
view or read media reports after I have been interviewed. (In part, this is
because someone else at CMDA does that.) But being asked to comment on this
article that was based on what I said to a reporter reminded me of how the media
uses their perspectives and agendas to create the news. Too frequently I find a
failure to report ‘the truth, the whole truth and nothing but the
truth.’
CMDA Vice President and National Director of Campus &
Community Ministries J. Scott Ries, MD: "Mention 'social media' during
a conversation with one of your colleagues and observe the resulting reaction of
the facial muscles. I predict you'll identify a subtle pupillary dilation,
upturning of the corners of the mouth and an increase in pace of speech...or
else you'll view a burrowing of the forehead creases, tightening of the lips and
clenching of the jaw. When in past history has any other 'tool' ever evoked such
emotional response from its users (or haters)?
CMDA Executive Vice President Gene Rudd, MD: “The
cost of healthcare has become a plague in and of itself. The burden of paying
for healthcare is the leading cause of bankruptcy with childbirth-related costs,
resulting in seven percent of those bankruptcies. Too many young families face
lifelong economic marginalization due to these excessive costs.